When I’m out and about and need to escape being overwhelmed with noise, light, or socializing, and the people I’m with don’t know I’m autistic, I don’t tell them that I’m heading towards a meltdown or am experiencing sensory overload.
I tell them I’m getting a migraine.
Meltdowns and migraines are, from my understanding, neurologically similar events, and for me they often go hand in hand– if I get one, it’s a signal to me that I’m likely to get the other pretty soon and need to take care of myself. The remedy is the same: removing myself from the situation and retreating to a dark, quiet room.
The difference is that NTs often don’t understand and simply dismiss sensory overload if you explain it to them as such, but nearly all of them understand what a migraine is and sympathize. 99% of the time, if I tell a NT that I have a migraine or am about to get one, they treat it as an emergency and help me get away from the source of the overload as quickly as possible. I am then free to recover in a quiet, dark place without anyone trying to invalidate my needs, forcing me to “tough it out”, or thinking that I’m rude for having to leave or to outright avoid certain events or situations in the first place.
Endorsed.
One of my partners gets seizures of the kind that disrupt sensory perceptions and cognition without being visible from the outside: we just call ‘em migraines sometimes for similar reasons.
If you do get actual migraines, it isn’t much of a stretch of the truth to say you’re getting one when you’re going to be getting one shortly.
But if you don’t, and you have a state of incapacity that requires roughly the same care? You totally have my permission as a bona fide migraine sufferer to just call it a damn migraine.
There is nothing wrong with providing a rough shorthand description to a stranger. You don’t owe any random person your full medical history, especially when you’re not in a state to be able to explain it!
… Oh. I thought migraines and overload were coincidentally overlapping. This explains a lot, actually.
Do you collect books and let them sit on your shelf!?
WHAT IS THIS!? AMATEUR hOUR? OF FUCKING COURSE!
Do you spend WAAAAAAY too much money on books even though they’re totally worth it but holy fucking shit fifteen dollars is the median and why is the world so effortlessly cruel?
Who’s got two thumbs and an empty wallet! Yes yes and yes!
WELL HAVE I GOT A SOLUTION FOR YOU
Thriftbooks is an amazing online site that sells used books! These books are, for the most part, in great condition. I’ve used this website for everything from textbooks to fiction to everything else in between! It has a wide selection with an even wider selection of options per book!
You want softcover? They’ve got it! Hardcover? Of course! Audio? Why not!
Hell! They even sell the books in other languages!
You might say to me, humanity, why are you telling us this? We already have barnes and noble!
Because, my poor, naive friend, thriftbooks sells the majority of it’s books for under four dollars.
That’s right. You heard me. Under. Four. Dollars.
And right now, they’re having a huge deal!
2 books for $7
3 books for $10
4 books for $12
But wait! There’s more!
If you leave a book in your cart for long enough, chances are you’ll be alerted when a seller nearby, for a cheaper price, has the same book! You’ll get it cheaper and faster, with less waste of paper and time!
And prices change! That book that would have cost you $3.79 one day might be $3.45 the next, and man oh man isn’t that the best thing to see when you check up on your cart.
So what are you waiting for, book lovers! Go! Go shop!
Go and rule the world!
Be the book lovers I know you can be!
DID I MENTION THAT THERE’S FREE SHIPPING OVER 10 DOLLARS
DID I MENTION THAT THERE’S ALSO A COUPON CODE YOU CAN USE FOR A LIMITED TIME
type in the word “welcome” when you get to checkout and you’ll get 15% off!
DID I ALSO MENTION THAT THERE ARE READING REWARDS
AND THAT EVER $50 YOU SPEND THEY GIVE YOU $5 BACK.
guys
five dollars
on this site
is a book
that is the cost of an entire book
you’re literally getting a free book
I NEED Y’ALL TO SEE THIS SIDE BY SIDE THOUGH
So to prove my very real point, I went to Barnes and Noble and picked out some of my favorites books that I already have on my shelves
(also, fyi, y’all should read these they’re bangin)
AND BECAUSE THE SHIPPING IS SO INSANE, IT WAS MEAN TO COME OUT TO $47.85 (and that’s at an online price, which discounts by a few dollars)
But with shipping, handling, and the extreme cost of books, my total came to this:
$72.30
Okay. Then I went onto thriftbooks and chose the same books in the same formats (hardcover, softcover, etc.)
Keep in mind that not all books are under $4 due to size, availability, how new they are to the world yada yadayada
But this was the final shopping cart.
Look.
Look at those lovely books.
My final check out price?
$21.86
AND THAT DOESN’T INCLUDE ANY OF THE AMAZING DISCOUNTS, DEALS, AND/OR PROMO CODES.
If you do the math, I saved $50.44.
And even if Barnes and Noble had given me that free shipping, I still would have saved $25.99. Do you know what that could buy you? That could buy you four more books on thriftbooks!
Thriftbooks fucking saved my broke college ass. And I’d encourage you all to use it if you can. Shipping may take 4-14 days, but I swear to god it’s worth every dollar that I would have burned.
THIS IS IN NO WAY AN ENCOURAGEMENT TO STOP SHOPPING AT BOOKSTORES. PLEASE DON’T. LOCAL BOOKSTORES ARE IMPORTANT AND VITAL AND SHOULD BE SUPPORTED!
I’m mostly making jabs at the big name companies, and honestly, my broke bookworm ass needs a break.
NOW YOU MAY ASK ME
HOW
HOW CAN IT GET ANY BETTER THAN THIS!?
It can’t. There’s no way!
WELL YES IT FUCKING CAN, BOOK NERDS!
Did you ever think to yourself; I love to read. But I sure wish there was a way to read my own books while I multi-task by helping the environment, the economy, and the seemingly never-ending and growing gap between low-income schools and libraries and their availability to reading material all at the same time…
Well, there is.
It’s called shopping at Thriftbooks
And what’s more:
Boom.
Right there.
This place is fucking amazing as hell and you should use it as often as you possibly can.
Save the environment. Keep your mind running. Shop Thriftbooks.
Hello fam. This is a post brought to you by aPatreonrequest—I know, it’s been a while since I’ve done one of these—from Sarah G, asking my thoughts and opinions on theZero Waste movement that is sweeping across certain parts of the online strata,
particularly on youtube and pinterest. (Links are in bold for ease of
access and viewing, and are non affiliated.)
Sarah writes: Hi Joy, I know this isn’t exactly in the realm of vampires (can’t wait for Phangs!) but I feel this is something you might have some good advice on if you have the spoons to talk about it. I recently started looking into more eco-friendly ways to live after your posts about allergies and toxic synthetics made me realize I had several things in my home that were triggering my asthma and I came across the concept of zero waste, which sounded really cool at first, and then I looked into it some more and it just sort of seems fake and I was wondering what your thoughts were on it.
Zero Waste is indeed something I’m familiar with, and like you, I have mixed feelings on the community around it. The principles of Zero Waste i.e. reducing the amount of waste you produce an the types of waste you produce, are great. I think it’s a solid, good idea to try and promote more ethical produce and buying habits, both for the planet and from a personal financial stand point. The more you can reuse and recycle the better. But I also feel the … fandom (can you call it that???) can be quite off putting and at times extremely self righteous and judgemental in attitude. Amidst the crunchy hippies, the minimalists and those just straight up trying to live a little better, are those who have managed to make something meant for the betterment of the planet into something about themselves, and they’re willing and ready to make sure we know just how evil we are for still having plastic straws with our drinks. Cause, y’know, it’s not big companies doing the most damage to the environment, no sirree it’s you and your plastic water bottle, you monster. (Don’t worry, we’ll get to why the war on plastic is being handled wrong.)
Yea, those people are very fake and very off putting, and I see a lot of them on youtube. And a lot of the time, they’re actually giving contradictory advice toward actually living a zero waste lifestyle.
When talking about this with other people, I have taken to calling this The Mason Jar Aesthetic.
A while ago, while I was talking about sustainable living with a friend (hi Michael!), and he mentioned that he and his wife were thinking of using mason jars as an alternative to buying expensive glassware, because if one breaks, you’ll always be able to replace them easily and you’ll always have a matching set. Which blew my mind as genius because not only is that a super cost effective, but it’s also a really sustainable way of living, both from a zero waste ethic standpoint and financially too.
For example, where I am in the US, for $15 I can usually get 12 half pint mason jars, if not for less depending on where I shop. They come with lids and seal top discs, which are easy to replace if I ever use them for canning and can also be safely frozen, sanitized and reused again and again, meaning they are long lasting and multi-purpose. And, if you are using them as drinkware and this is important to you, they all match.
For me however, the real benefit of the humble mason jar, is that they can be fully recycled, though it is important to note that in some regions, the tops may need to go to a separate facility from the glass jar itself, so you’d need to check with your local recycling center on that. But regardless, the whole thing is recyclable, sturdy, multi-purpose, easily transportable (seal your drink and off you go!), cost effective, and some may even argue, aesthetically pleasing.
Pinterest certainly seems to think so:
[ID: a screenshot from the website Pinterest depicting many diy crafty projets for home and the kitchen involving mason jars]
Some of the larger pint ones, would also fit nicely into a mobility aid like a cup holder, for those of us who need easy to grip handles. (Also as an aside, if you need more stability and often lament that there is no such thing as a two handed mug—or even if you find most mug handles too small to get a good grip—those things are great, they just clip right on. Life changing.) Because if your argument for sustainability isn’t inclusive, it’s not good enough.
Which is where the war on plastic comes in. Looking at you “lets ban all drinking straws regardless of the fact that plastic straws are a vital necessity for some people with disabilities”, and no, pasta straws are not a safe alternative for everyone (allergies/celiac), metal is expensive and also inflexible, and neither are the bamboo, glass or silicone ones. Banning plastic straws at this moment in time, is not the solution.
Brighter minds than mine have tried to solve this, but as a general proposal, instead of an outright ban, until a sustainable and disabled friendly alternative is found, plastic straws in food establishments could be issued by request, without—and this is important—without shaming disabled people for needing to use something which you can easily opt to avoid if you desire to do so. Because once more kids and with feeling, if your argument for sustainability isn’t inclusive, it’s not good enough.
(I am fully prepared to get hate over this, the arguments over this shit on twitter were wild. And no, it is not the responsibility of disabled people to come up with a solution to this, while subsisting on restricted income, restricted access to resources, and often times restricted mobility to boot. If you feel this strongly about disabled people using plastic straws, be part of the solution that helps to find a valid alternative. You want this problem fixed, you do it inclusively.)
Now, where was I, oh yeah. Mason jars.
By contrast, a box of 4 glass tumblers of roughly the same volume, can be anywhere from $10-$20 or even more depending on where you look. And while they might look nice, they are single purpose, expensive, and also—and this is important, cause not a lot of people know this—cannot be recycled.
But Joy, you say, waiting to throw the shards of the broken glass you just swept up off the floor into the recycling, how much damage can it really do? Glass is just glass? Right?
Well, here’s the thing about this type of glass. In order to make it thin and aesthetically appealing, it has to be treated with special chemicals (like molten potassium nitrate) to toughen it up and make it shock resistant to temperatures. The problem with this however, is that treated glass, doesn’t melt at the same temperature as untreated glass, which can cause several problems at recycling facilities, ranging from damaged equipment at the plant (not good!) to creating flawed, glass which is too fragile for use, and will ultimately, you guessed it, end up on the landfill. [Source] The same is true of mirrors and glass from doors and windowpanes. [Source]
So if you do drop your glass and it breaks, please don’t put it in the recycling, wrap it up in brown paper and throw it in the trash. Similarly, if you are sick of the sight of your old glassware, don’t pitch it. Instead consider giving it to goodwill or your local equivalent. Someone will use it.
And don’t feel bad if you didn’t know. I never knew this either till a while ago, but it made me really think twice about how non-eco-friendly and sustainable my home life is. And I’m not saying this to guilt anymore or make you feel bad that you don’t do more, heck knows I never used to give a crap about any of this stuff until I started getting sick and developed multiple chemical sensitivities (Hi if you’re new here, I’m allergic to the modern world due to some frankly dystopian levels of auto-immune problems that emerged in the last few years, send help) and realized just how very not good a lot of the things I was doing are, for both me and the planet.
I am not a crunchy hippy by choice, but by necessity of survival. You have to be when plastics and most mattress fillers and couch stuffing starts bringing you out in a rash/makes you wheeze and suddenly you find yourself wandering the aisles of “eco-friendly" stores wondering if the sales rep you’re listening to actually knows what they’re talking about or if they’re a tinfoil hatter who also puts essential oils in their drinking water. (We’ve been over this, do not.)
But do you know what I also noticed in those supposedly eco-friendly stores?
Mason jar drinkware being sold at $20 a pop. Surely, I thought to myself, surely it’s $20 for a set of at least four?
Nope.
And do you know what else? This wasn’t just a regular mason jar glass that had been tinted blue, no, this was “treated shock resistant glass”. So what they did was, they took an iconic recyclable object that is actually very cheap to produce and buy, inflated the cost by a huge amount, and then, made it non-recyclable, for profit.
Are-you-freaking-kidding-me?
And that’s a huge problem I find, with trying to find information and resources online about sustainable living and eco-friendly products, because a lot of them? Are actually hugely wasteful if not in actual material, then certainly in mentality.
I watched one notable youtuber vlog about how she got rid of everything in her kitchen and replaced it with more eco-friendly (and extremely expensive) options, because she just couldn’t stand the thought of those "toxic" things being in her kitchen … except … they weren’t doing her any harm, and they weren’t worn out. They weren’t falling apart. They were still very much safe and usable and might even have been donated to somewhere like goodwill for someone else to use … but she threw them out to replace them with shiny bamboo and kitschy ceramics, and now they’re heading toward a landfill, where they will not be used to their fullest extent, and where they will pollute the earth.
Surely by the zero waste ethos, it’s more sustainable to use the product until it has to be replaced, and then buy the eco-made alternative?
To give you an example, I’m in the process of replacing all my tupperware with glass, metal and ceramics because I’m allergic to plastics, but also because I’d like to invest in more sustainable planet friendly options for the future. But I’m also doing it once piece at a time. Partly because my husband can and does still use those things, but also because, well, I can’t afford to replace them all. I just plain can’t, it’s too expensive to go out and replace all my leftover food containers with stainless steel lunch boxes from Japan. I’d like to, and I wish I could, but if wishes were horses then I’d need a much bigger yard. (That’s how that saying goes, right?)
I guess the point of this lengthy ramble, is a complaint that the aesthetic of sustainability is actually more popular than actual ethical sustainable practices. Too many people are concerned with looking like they care, but don’t actually want to get into the nuance of things. And I get it, I do. It’s nice to feel like you’re doing something good. Who doesn’t want to feel like they’re taking responsibility for their time on this earth and being the best version of themselves?
But it has to require thought, and method, and looking beyond the narrow scope of your own four walls (metaphorical or otherwise) and what that one person on youtube said, while merely swapping one form of consumerism for another because it looks and feels ethical, but not actually exacting any kind of global change.
And that’s the difference between using a mason jar to drink out of, and the Mason Jar Aesthetic. Being aware of your impact on the earth and doing what you can within your limits and means (and respecting the means of others), vs wanting to be seen as such. And it’s an important distinction and one that requires self reflection and a great deal more thought than buying into an aesthetic.
Me switching out all my plastics and turning my backyard into a compost heap might make my home more eco-friendly, but real change cannot be effected without also putting pressure on large corporations (looking at you Nestle) to change their practices, and boycotting those stores in favor of expensive organic and “ethical” brands is not the solution to this. It merely creates a niche market where the rich and privileged are able to live in a very small self-contained bubble of moral “eco purity”, while actively punching down at those who cannot. Real change? Comes from getting involved in the community and lobbying against big corporations like Nestle turning round and extracting water from drought stricken states, and then selling it back for profit. It’s boots to the ground, and writing letters and emails, and doing more than just buying organic bamboo washcloths and telling yourself you saved the world one micro-bead of plastic at a time.
So do I think zero waste is a crock? Absolutely not, at the core it has some great points about how we use and consume products, which are things we should be thinking about in our day to day lives. But do I feel it places too much emphasis on the self rather than the global community? Absolutely. And at it’s core sustainability isn’t about the self. It’s about community, and the changes we can affect together in order to make the world a little better than how we found it.
Otherwise it’s just survivalism with a rose tinted aesthetic.
What do you guys think? Does anyone have anything to add? Let me know in the comments and see if we can get a discussion going. Also, if you’d like to see more of these types of posts, Patreon subscribers can expect to see them two weeks earlier than tumblr, and get a say in what we discuss, so if you’d like to see me talk about something, let me know 🙂
Remember a few months ago when it felt like every single website in existence updated their privacy policy? That was because of GDPR, the General Data Protection Regulation from the EU.
Another part of GDPR? Right of access / right to data portability.
What this means is that if you ask for it, companies are to give you access to your data so that you could theoretically move it to another service. Many companies have done this by allowing you to export your data and download it. Even if a company doesn’t provide an automated way, you should still be able to contact them and they should provide your data – it doesn’t have to be automatically generated and downloadable.
Tumblr does provide an automated way to export your blog. This should be done individually for each sideblog as well, if you want. (These are instructions for the website – not the app.)
Go to your blog settings page, ie https://www.tumblr.com/settings/blog/<your-blog-name>.
Look for the Export section (currently at the bottom)
Click the “Export <your-blog-name>” button.
Depending on the size of your blog, it may take a while to generate the export. It will say that it’s processing, and you can reload the page and come back later to check if it’s done.
When your export is processed and ready, the Export section will have a button to download.
Once you’ve downloaded the file, extract it to a folder on your computer. It will contain:
A media folder with images, gifs, videos, and audio files.
A messages xml file. Your messages are in here, even if it doesn’t look “human readable” and is gibberish to you, I promise. There are tools that will “beautify” xml to make it more readable.
A posts.zip file. Extract this and you’ll see an html folder that has an html file for each of your posts.
Holy shit they finally did it.
BTW, the size of the export varies wildly based on how much media content is on your blog. I’ve got a main and a sideblog with a little over 6000 posts each, one a bit heavier on text, the other skewing more towards photosets and the like. The zip files are 3 gigs and 11 gigs respectively.
The generic Adrenaclick will cost $109.99 for two doses, compared with $649.99 for the same amount of drug in an EpiPen. That’s good news, both for financial and safety reasons: STAT reported last year that some parents and institutions had begun filling up syringes with epinephrine as a cost-cutting measure, a DIY solution that could pose great risk to the children who may have eventually needed injections. A more affordable alternative will help ensure safer epinephrine injections.
That’s assuming, though, that the people who need these devices know exactly what to ask for when they’re sitting in their doctors’ offices. Otherwise, they’ll still be stuck with the overpriced product. Here’s why: The mechanism by which Adrenaclick injects the drug is slightly different from EpiPen’s mechanism, so the Food and Drug Administration has ruled that the two are not therapeutically equivalent. That distinction is important because it means a prescription for an EpiPen cannot be filled with Adrenaclick. If you want the cheaper option, you have to have an Adrenaclick prescription.
You must ask your doctor for an Adrenaclick prescription!
I also found a coupon from Impax on 0.15mg and 0.3mg epinephrine injection, USP auto-injectors, which appear to be the generic version of Adrenaclick; these coupons cover up to $100 per pack for 3 packs of these injectors (6 total injectors).
Pass this information on, potentially save a life.
Especially since there is still a shortage on both Epipens and the generic epinephrine injectors! I haven’t been able to get them in the pharmacy for weeks, so do be aware of that also, and make sure the pharmacy has them or their warehouse has them in stock!
gentle reminder that it’s always a good idea to ask *before* you vent/rant to your friends – it’s harder to remember this in person sometimes but people may not be in the best headspace to offer emotional support and that doesn’t mean they don’t care about you!
The average active adult needs 2,000 calories per day in order to function in a safe and healthy manner. If I’m active to the point where I consistently run 1+ hour every day, then it is far more likely that my caloric needs are around 2,400-2,500.
Considering that, a meal of 1,200 calories would perfectly suit my needs. It would supply roughly half of my calorie requirements, which is a God-send since a fast food meal is relatively cheap. It’s a great value, especially if I don’t have much time to cook or have the resources to prepare my own meals!
The average burger is going to supply me with significant protein and carbs. That’s exactly what I’d need in order to build more muscle and have enough energy to make it through a workout. Even the sugar within the meal can be beneficial in supplying me with a boost of energy and can stop me from feeling hungry for a prolonged period of time. Not half bad.
Is this the most healthy meal known to man? Of course not. But it’s still a very reasonable deal and the calorie count is well within the average adult’s daily needs.
Don’t let calories scare you! You need them. If you were capable of burning off an entire meal within the hour, you’d probably be dead by now.
1200 empty calories in a meal
next to no nutrition. all the calories are sugar and fat. that’s it. you’ll have no energy and have glucose spikes in your blood because the lack of fiber because of the lack of complex carbs. this is diabetes in a meal.
so no, you should not be hungry for diabetes
Nutritionally, this BK meal contains roughly 28g of protein and 3g of dietary fiber. It potentiallyalso includes 35% of our Vitamin C daily requirements, 2% Vitamin A, 12% calcium, and 27% iron. Of the 1,010 calories (that I could verify directly from the company’s nutritional information guide), only 410 are from fat. That isn’t a terribly significant amount of fat, in the long run, nor are the nutrients small enough to be viewed as negligible.
Eating this will not cause you to get diabetes. Eating this meal is perfectly fine if you do have diabetes, as long as you are able to adjust your insulin intake accordingly. So don’t use an illness as your debate point – Diabetic people are not a prop.
“So don’t use an illness as your debate point – Diabetic people are not a prop.” I want that and variations of that on t shirts.
damn, man. Someone just got completely schooled by a nutritionist.
THIS A GOOD POST
I’ve reblogged this again but I feel like it needs to be SAID again. Also someone needs to please come drive me to burger king and buy me a burger. Pretty please?
ok this has become a somewhat popular post, and I just want to add on because I realise this just says about dating, but it extends to friendships too. just be aware of this and remind the person of their worth, yeah? Even if it’s just a friend and not a partner
Can any other autistic people relate to this? When someone asks me an open-ended question about something I’m interested in and knowledgeable about, I don’t know how to infodump – it’s like all the information is there but I don’t know how to organize it or where to start, so I end up not being able to answer at all. Anyone else?
I ask for specifics. So if they ask something like “what do you know about 2A03?” I say “can you ask me specifically what you want me to tell you?” Cuz otherwise im sitting there with 1 million facts buzzing around and no way to know which one i should start with.
This is brilliant thank you for this post. This happened to me in a recent job interview and I was really stuck and it was awkward.
Yes, I just freeze and I can’t organise my thoughts into words. Thanks for the tip! 🙂